What are some organizations that can help a family cope with a child's disorder?

CIGNA:  http://www.cigna.com/customer_care/

World Vision:  http://www.worldvision.org/content.nsf/pages/search-for-a-child?open&campaign=11935141&cmp=KNC-11935141&ttcode=helpchild

FRAXA: http://www.fraxa.org/

NSOGC: http://pediatrics.about.com/gi/dynamic/offsite.htm?zi=1/XJ&sdn=pediatrics&cdn=health&tm=754&gps=127_553_1436_703&f=10&tt=12&bt=0&bts=0&zu=http%3A//www.nsgc.org/